I signed up for this. I knew what I was getting into when I made the decision to move back to Massachusetts and into my mother-in-law's home. My MIL will be 91 in November and has been in a slow, but steady decline over the past few years. We could easily see it whenever we visited.
It starts out slowly. They no longer walk as fast or as far. After a while they are holding onto your arm to go down the curb. Next, they use a cane for anything outside of the house. Before long, the cane is used all the time and the walker soon follows.
Here's where it usually ramps up if you have a loved one with dementia/memory issues. Everyone has those moments of "where the hell did I put that". But with any kind of dementia, it will slowly evolve. Forgetting to take your morning pills occasionally turns into a few times a week. You buy stuff at the store forgetting you already have some at home. Out goes a dozen expired yogurts.
This is where things get tricky, especially when multiple siblings are involved. In my case, my FIL passed away almost 9 years ago. The man needed to be in a nursing home, plain and simple. My MIL refused. The last few years of his life he was blind, extremely hard of hearing and could barely stand up. He thought he could, hence my MIL was on a first name basis with all shifts of the fire department who she had to call at least a couple of times a week to pick him up off the floor.
Back then, we weren't in a position to do much. My husband's two sisters had to handle everything. Burnout hits fast and furious when your mother insists on keeping your father at home. Almost every time we visited the last 5 years of his life, there was a trip to the hospital for something.
So I can understand why neither of my sisters-in-law want to go through that again.
Which brings me to our current situation. Right now, my MIL is still pretty with it. Mostly. She does forget to take her pills, so I've become the pill nazi, reminding her every day. She forgets new information easily. We have to repeat things often, like when my husband is working or when someone is coming over. She has no clue how to work the tv remote other than on/off. Streaming apps are beyond her capability to understand. She still knows who everyone is and you can hold a lengthy conversation with her.
Dementia is a fickle bitch. The end result is the same, but everyone's journey is different. However, there are stages that most will go through.
Currently my MIL is at the stage where she knows that her memory is slowly going to shit but is in denial.
Personality changes are common. My dad was always really laid-back and easy going. The last 5-10 years if his life he turned into Crankshaft (a cranky cartoon character). He got pissed off easily, which was hard sometimes. My MIL isn't as patient as she used to be.
Obsessive behavior is common. People with memory issues tend to become fixated on an object... with my mom it was her pocketbook. My MIL is fixated on her cat. We moved here with our 16 year old dog and 8 month old kitten. If you ask my MIL, her 12 year old cat has been traumatized. There's nothing wrong with this cat other than she has a thyroid issue and is a skinny, bony thing. My MIL think the cat needs to be fed every few hours. She freaking gets up at 4am to feed the thing. Nine times out of ten, the cat eats two bites and walks away. The amount of cat food this woman throws out is mind boggling. She's also obsessed with laundry. Not a day goes by without the washer and dryer going.
Hoarding, or "saving" shit is common. Does my MIL need 4 dozen plastic rosary beads that she gets in junk mail soliciting for donations? NO.
What is really pissing me off the most is the lack of empathy the rest of the family seems to have. I get the feeling that they look at doing anything to help out as a duty. One sister takes her to the library and to lunch once a week. Another will pop in periodically to check on her. The sister in Indianapolis comes 2 or 3 times a year... but she is effing clueless and useless (that's another whole blog in itself). There are two other sons, one who pretty much went low contact when he was in his late teens, and the other is an effing pedophile who I will bodily harm if he comes near here.
This woman's house has been in need of power washing for at least 3 years. Someone went as far as to buy a container of stuff you spray on, let soak, and rinse off. Did this person ever use it? Nope. I was outside today taking care of it. The light yellow house is no longer green.
This woman has no power of attorney in place. We're not sure if she has advanced directives. She's still paying her bills, but we know she's missed things. The two sisters who are here took her to lunch this week and broached the subject with her. She seemed to be open to it, but where her mind is now, it takes a long time for her to make a decision... and let's face it, time is running out when youre almost 91.
So, my GA friends, if you have parents who are approaching their twilight years, sit down and have that hard conversation. Ask them: Do you have advanced directives. Do you have a will? What are your plans if you cant take care of yourself?
Older people have a hard time letting go of control and many think that by signing a medical or financial power of attorney then they are having those decisions taken away from then. Make it clear that power of attorney privileges come into play only when they are incapacitated and can't make decisions for themselves. If dementia is a factor, their doctor will be able to step in and advise at what point they cant be relied on to make informed decisions.
Elderly parents need to be taken care of to the best of their caregivers ability. But caregivers need to take time for themselves and for fuck's sake DO NOT EVER MAKE A PROMISE TO KEEP THEM OUT OF A NURSING HOME.
Is keeping someone at home better? Of course it is. Until their care exceeds what the caregiver is able to provide without compromising their own mental health and physical well-being.
Nursing homes aren't great, but as a family member, you have to be able to make that choice if necessary. My mom should have been in one, but I found out that my dad made my brothers promise not to put her in one. That wasn't fair to any of us. I don't know why my MIL wouldn't put my FIL in one, but same thing. Her own decline was accelerated as a direct result of keeping him at home. Ive told my kids not to feel guilty if they have to park my ass in one someday. I don't want to be a burden on them.
So, if you have elderly parents that you're on good terms with, sit down and make sure everyone is on the same page.
And don't feel guilty cleaning out the cabinets and throwing away spices that expired in 1998 and laxatives that expired in 2002.
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