dughlas

I figured. Just wanted to be supportive.

I was thinking if we cover him in honey and stake him out in front of a bunch of ...

I may be on the mend. I had two normal bp and heart rate readings this morning. The first early here at home the second roughly 4hrs later at the urologist. I'm speculating but because Tepezza works on muscle I think that I had a full body version of the mechanism of my migraines. Vasoconstriction. The first symptom a massive migraine, 8 on scale of 10, makes sense because those vessels are already highly susceptible to vasoconstriction. By constricting it narrowed vessels required the heart to pump harder and faster to maintain blood flow. It also explains why the phlebotomist had so much my trouble finding and sticking a vein. I'm not entirely in the clear. As my body tries to right itself there's still the lactic acid buildup from the muscle cramps to clear. The urologist told me there were large leukocytes in my urine samples but I don't display any syptom of infection so I think it's my body trying to fix whatever the hell went wrong. Poor confused body. I am exhausted and have a migraine knocking. So blessed be y'all.

Mum has often said that if a child doesn't get enough attention doing good they'll revert to doing ill because to them any attention is better than none. Do you suppose if we doused Drew in all sorts of sweetness it might change him for the better? We know he like sweets. He can be downright greedy about some of them, dulce con leche, BL. Drewdo! You beware speakin' poorly about Mum. I don't speak ill about your Mama. Not even in Drewth.

She if you can find her rating with the medical association she belongs to. What is her success rate for the surgery, do not expect 100% because while it's hard to believe there are patients who do not follow instructions. Ask you doc why he referred you to her. Do due diligence and if you're convinced you would be better with some else fine.

I managed half the day before I became too tired to continue. I did a couple of kiltings but the tale will need to wait until I am better rested. That and my fingers decided to join the fun and begin cramping again the morning. It's been nearly 2 months since that was a regular event.

Gary, I must apologize I have been slack in following and commenting on Bearpaw. I like the story very much. I simply lack the energy. Now I need to take my evening nap, the fourth today, so I wake up in time to go to bed for night. Yeah, I'm exhausted. I'm hoping to get to faire tomorrow at least for a few hours. They're gonna ask what I'm doing there. The only explanation I have is that I could stay home and be miserable all alone or I could be miserable while spending some time with friends who love and care for me and who will make sure I'm okay. I need my friends, I need to be a bit selfish, I'm tired of dealing with this alone. Until next time. Blessed be y'all.

Oh, my dear friend. I am no where near well. All the issues remain. The only consolation is that the doctor sent word this afternoon that any possible benefits do not justify the potential for an even more severe reaction. He is stopping further infusions at this time. That is a weight off my shoulders. Now I just need this damnable potion to begone from my body. I have spent almost the entirety of the afternoon in bed. I can't even summon enough energy to read. I have no appetite. For brekkie I forced myself to eat a fresh croissant from a local Italian bakery. I know Clo. Imagine Italians making croissant but they are very good. Apparently my sense of taste is off. While it was light and tender as usual it tasted Iike nothing. I had no interestin eating this evening but made myself eat a stuffed roast chicken breast. It is a favorite but I had to force myself to choke it down. So as I say, I am no where near well but I will again soon.

I have spoken with Mum, Sadie, my patient liaison at Horizon and the nurse at the endocrinologist. Mum and Sadie said at the very least I could cancel the next infusion until we have a better handle on things. The nurse at the doctor's said he had not made a final decision. He was going to talk with my nephrologist but she thought he was seriously leaning toward stopping. I told I had decided I wanted to discontinue because I have a history of responding weirdly to medications. Sometimes the opposite of what is expected. She was going to give him an additional note with my decision. I think she thought it the right move but couldn't come right out and say so. Now I just need his final concurrence. Oh , and another nap. I'm exhausted.

I love the sentiment Albert and hope all the best for you Steve.

I actually made physical visit to both the endocrinologist and the nephrologist. Both visits went well. The nurse that oversees Tepezza patients took time for a real medical evaluation complete with a lis of questions from the doc. He was out of the office. She told me it be prepared for to discontinue the treatment based on the risks. I actually hope he does. I am frightened that the next treatment could put me in the hospital. Waiting to hear.

Thanks y'all for your support and encouragement. I am a bit spoiled. Mum is a retired nurse and had things gone as she wished she would have become a PA. Sadly, my dad nixed that. Because of Mum, she was well known and respected in the local medical community, I grew up under the care of excellent doctors and have been fortunate to have for the most continued that trend. I respect the training and education but doctors do not intimidate me, I will get the answers I need. Blessed be y'all.

So it's been an interesting day. I couldn't get in contact with endocrinologist overseeing my infusion. Their phone system either just looped or rang and rang without anyone answering. Even my patient liaison could get them. She eventually sent two emails. They called me back just before leaving for the day. I missed the call so need to call them back tomorrow. I did get in touch with the nephrologist and left a message to have a nurse call me back she did. When I explained that I was being treated with Tepezza infusion and was having issues with numerous side effects and I call them because my bp had spiked dramatically. She didn't know what Tepezza was, could I spell it so she could look it up. I did. I explained it took a couple of days until I understood what was happening because the first thing was a serious migraine. "Oh you get migraines". "Yes, I have intractable migraine and have migraine most days". "Well, your migraine could be the problem. You need to call your doctor for treatment. How do you treat them?" "Well, because they're intactable and occur so frequently I rely on resting and compresses. I only medicate the most severe by taking an Aleve." "Oh! You can't do that. Aleve will raise your bp." Well my specialist at Thomas Jefferson and Dr Sommerman both have approved that course of action as the lesser of two evils. Since the doctors are in agreement and you're a nurse who really knows nothing about the my circumstances I will continue to follow their instructions. Since I only just became aware in the last day or two that my symptoms were related to the Tepezza and I didn't have functioning bp cuff I bought a new one yesterday." "Okay, tell me readings." I did, the three I had at that point. "You only have three. Well that's not enough." "As I explained earlier my bp readings to this point have been acceptable. I needed to buy a cuff because I didn't have one. I only been able to tak three readings. Two last evening and one this morning." "Well, I really think you need to consider further treatment for your migraine." "I have been dealing with migraine for more than 45 years. That is not my current issue. All my symptoms are related to the infusions." "Okay, I'll pass these notes on to the doctor's nurse and see if he has any instructions." "Thank you." Since she knows nothing about Tepezza and only enough about migraine to be dangerous she focused only on what she thought she knew and ignored what I told her. Interestingly, I had fasting blood drawn this morning for the nephrologist. Guess what the only really bad result was? My glucose and triglycerides are high. One of the most common side effects of Tepezza is increased blood sugar. They specifically diabetics to pay close attention to their blood sugar. Of the 13 most common side effects I have defintely experienced 6 and possibly 2 others. Since my hair is already slowly fading away it's difficult to tell if it disappearing faster. And I noticed that I don't hear some voices as well as before so there might be some hearing loss but that should be temporary. Of the 6 most serious I am dealing with 4. Those are the ones that got my attention this week. The nephrologist's nurse also called back because he has some instructions for me. Sadly, I didn't get that message until they'd left for the day. Another call for the morning. My guess is he saw the glucose and wants to do something to correct it. Boy is he gonna be surprised when I say NO. I'm going to tell them that he needs to research Tepezza and it's potential side effects so that when I see him on October 3rd we can talk. I will do additional testing but more than that nothing until at least 60 days after the last infusion. Oh, Tepezza works on the muscles behind the eye. That's how it corrects the TED. Unfortunately, it's indiscriminate and messes with any other muscle it can. Hence my issues.

No, unfortunately this are some of the more common side effects. I just hadn't dealt with such extremes. Typically, a couple of days and I was back to normal, if I was ever "normal". Last evening my bp was 163/114, 2 hours after taking my evening meds. This morning it was down to 148/100. Better but still fifteen points over my usual readings. I'll continue monitoring it. I have an appt with my nephrologist in 2.5 weeks but will be at the medical campus early Monday am to see my urologist. If things stay like this I might just stop by and put a bug in the doc's ear. I haven another infusion in 2 weeks. I like to have a better handle on things before then.

See, B knows.

Drone footage ... there's been enough of it over the years.

I've been coping with more side effects from my infusions. I think because initially I'd only had the two loading doses before the fiasco that delayed the following maintenance doses. I didn't have serious issues. Now that I've since had four infusions since July 5th I am dealing with progressively worsening issues. My BP is elevated aggravating my migraines, my sleep patterns are disturbed, I've got tendinitis in my right shoulder and elbow; I'm right handed so hard to avoid using that arm. The tendons in my hamstrings are extremely tight and cramp at the least provocation. In the last day my hips have started making walking painful. My fingers and toes cramp randomly, great fun trying to rub the cramps to loosen them as that just causes the noncramping hand to cramp. The connections between my ribs and sternum hurt as well as along my lower spine. Coughing and sneezing are such a joy except I'm not really into S&M. The only good news is I only have two more infusions so by this time in October I'm done. I hope I survive. Blessed be y'all.

You have the most adorkable cheeks ...

My dad just had the catracts in his eyes removed earlier this summer. The right eye while I was here in June. The left a couple weeks later in July. He had no issues and is very glad he had it done. Dad was just two months shy of his 89th birthday when they did the first eye. The ophthalmologist used lenses to correct his distance vision so now he only needs readers. He is thrilled. Mum and my stepdad had the surgery done several years ago. Of everyone I know that had the surgery only one had issues. He didn't follow instructions so his recovery took longer. He's the same guy who wouldn't listen to the surgeon or PT after corrective surgery for nerve damage in his neck. His recovery was delayed and not as full as it might have been. Do what you are told and you will be fine.

Is it really the Eiffel Tower or Nick and Charlie that makes this a favorite?

Please stay safe. Rumor has it that the Canadians are sending us a bit of their cooler drier air. Something to make it feel like mid-September.

The third and final kilting of the day was a slightly older fellow. He and his lady arrived whilst I was preoccupied with seeking respit for my weary bones. It was until he'd selected a kilt in Dress Royal Stewart tartan. One of the only true tartans we carry because it is so readily available and recognised. I leapt to my feet, yes, yes it was more a matter of rising groaning from the stool I was seated upon. Yes, I recognize I am being verbose but in my defense I spent that last two days as a Scot in Elizabethan England. We use lots and lots of words to say little. Afterall, there's really very little else in entertainment if you already heard the gossip about Angus confusing a Frenchman with one of his sheep. Oh by Woden's one eye, it was Viking weekend hence a Viking curse, I digress once more. In my defense I am worn and weary nigh unto death and much in need of a quiet night's respite. See, lots of words saying very little. What? Oh, yes that third kilting. I've forgotten his name. Let's call him "Yummy" afterall I was gonna turn him into eye candy. Now our lad Yummy was a bit older than the preceding two. I would guess him nigh unto an age with Paige but of an imperial height. I can vouchsafe he was no hobbit as he lacked the large hairy feet. Yummy had broad shoulders, a slim waist and well muscled legs. Most definitely, attractive with warm brown eyes and medium dark hair. He was wearing a light weight denim shirt which nicely coordinated with the blue in the plaid he was wearing. We went through the entire process of the kilt walk. I must say he was prefectly in proportion and looked grand in the kilt. His lady enjoyed it. Sadly, Yummy was not as merry as Andrew and Peter nor was he surly. Dour might best describe him. I think he was not quite comfortable making light of himself so the teasing we do during a kilting and the attention fell flat. Mayhaps in his younger days he was mocked for his size. I was successful however, as I created a truly delightful bit of eye candy. It was a shame he couldn't enjoy it more. Mayhaps another try on a different day we can try one more. That was the third and final kilting of the day ...

More you say. Why am I not surprised. The next lad, Peter, came in with his lady fair. I know this because her t-shirt stated most cleverly "I My Boyfriend" whilst his, yes, you guessed it, read "I My Girlfriend". Now normally I find things of this nature near nauseating in treacle sweetness. However, these two were likely all of 20 and innocently charming. That and I used his shirt to my advantage and asked if he'd ever consider trying on a kilt for the lady he loved. Afterall, did she not deserve a bit of eye candy. Of course she was enamored of the idea. I am sometimes evil in my search of entertainment. Since it was all in the way of making merry Peter agreed. Peter too, was an attractive lad. Slender and nicely muscled as is wont for an active lad. Tall, again 6 foot plus with a mop of dark chocolate curls a la Timothee Chalamet and dark brown eyes. Pink blushed cheeks and full rosy lips, very kissable I'd think. While his bum was not as full and round as the preceding lad Andrew it was tightly muscled and dimpled at the side. What you might consider as being athletic. I wonder if he might have run track or played lacrosse in HS. A prime example of healthy young male. Again I whisked him away to my lair ... er, I mean the quiet back corner to prepare him for viewing. Peter's t-shirt was black and he was fine with bold. I choose a buffalo plaid in black, white and turquoise. Once he was kilted I checked his back side to be certain all was as it should be. Oops a couple of the pleats were twisted. How fortuitous as that meant I need smooth and pet them into place. What?!? I am very subtle ... er, professional. I don't ever suggest I take an inseam just so I can jiggle the googly bits like the tailor downtown. Once all was in readiness I bid his lady join us. Again, shielding him from view. I'll not go through the instructions again since we've just done that with Andrew. The bell rang, we cried "Kilting" and the lad set forth across the shop. Now while Andrew's pleats danced merrily along behind. Peter's swayed alluringly to the flexing of his firm young hams. His lady was delighted and giggled behind me while recording the event for repeated viewing. Peter stood tall and straight while we boldly evaluated his assets before I bid him return. Again having him pause at the mid point so as to appreciate the front view. The lady and I agreed that while the front was truly delightful we really wanted to see the back again. The lad acquiesced, turning about. His first stance was bold and striking but on hearing my instruction to stand with his feet shoulder width apart he narrowed his stance. I was forced to bid him spread his legs for me. Which he promptly did. Hear now, minds outta the gutters there was none oh that sort of goings on. I am a professional but I digress. He stood bold once more with fists on hips. At my request he twisted and looked over his shouler. Now I thought him a young innocent but what gazed at us was an imp with a slightly naughty grin. Delightful. Thus Peter was made eye candy. Are you sated yet or must I continue? Oh, very well ...

I know y'all have been waiting, mostly patiently, for kilt tales. It has been a rather odd season so far. While was excellent the first two weekends we sold very kilt. Last week kilt sales improved dramatically. However, the timing of sales was odd. Not only for us but other shops as well. We stood about twiddling our thumbs wishing for a customer, the suddenly the place was packed to the gills for an hour or so. Then everyone disappeared again, a bit later we were all busy some of us, me, helping multiple folks at one time. That doesn't allow for the more personal attention I am known for. Today was less busy, slowest day of the year. The weather forecast was late day/evening thunderstorms. They arrived just before 3pm. Fortunately, because it was a slow day I had opportunity to do three separate kiltings. Saddly, none of the lads made a purchase but I told the first two lads we were doing the kilting strictly for the merriment. The first lad came in with his lady and another couple. They were all dressed in faire appropriate garb. He was in a white short sleeve pullover and well fitted khaki pants. I say well fitted because he had a very shapely bum. He stood a bit over six foot, had a 32 inch waist and long well formed legs. Have mentioned that a shapely male calf was considered of prime importance during the Elizabethan period. We have the Queen's beloved turtle dove, Robert Dudley, 1st Earl of Leicester for that. But, I digress, Andrew, that was the lad's name acquiesced to becoming a bit of eye candy. Oh, I forgot to mention he was blond, blue eyed and had a charmingly handsome face. Normally he would dress in colors less likely to draw attention. However, since this was strictly for our fun he allowed me to dress him in an eye catching kilt of soft pastels. The base color was a very subdued butter yellow with broad cross lines in turquoise, magenta and soft purple. I know it sounds garish but it's not. We refer to as the Easter egg tartan. When we first introduced it three years ago the master only ordered 25 yards. The majority of those kilts sold within three weeks. We only have this one left because it is a small and it will require a young teen of stout heart to wear it. But again I digress. So in case you do not remember when I do a kilting I typically take the lad to a quiet back corner to dress him. The I call the interested parties to join us. I stand directly behind the lad shielding him from view while the others line up behind him preparing their devices for capturing photo and video memories of the event. The kilt walk begins with me giving soft instructions for lad to walk in his normal gait across the shop. Stopping at the far side of the shop gazing at the varied and sundry this on the other side of our garden. Whilst he is perusing those things we are contemplating his assets ... er, I mean pleats. Now imagine if you might a pair of lovely melons lovingly wrapped in clinging pleats. I rang the bell and cried "KILTING" only to have my cry echoed but my compatriots. Andrew began his walk. Those delighfully muscular hams flexed with each stride causing pleats to swing and sway. When he reached the end of the walk he stood back to us ... we were awestruck. The ladies were sporting ear to ear smiles for the lad was very well hung. He's pleats people his pleats. They draped in loving embrace display his extraordinary fine form. Once we'd had our fill of that view I bid him return to stopping him short about three paces so we could admire the front view. I think I mentioned he had a charming face but really we wanted to see his backside. I bid him turn and stand with his feet spaced shoulder width apart with his fists upon his hips. The stance of a bold Scot. Then I ask him to twist at the waist so he could look his shoulder at us and wink ... that my darlings is the "I'm too sexy for my kilt" pose and yes Andrew was most definitely too sexy for his kilt. Shall I continue on to the next tale or do need to catch your breath and settle your heart? Oh, I neglected to tell you the lad was in his mid-20's.

I suppose Drewdo doesn't count as he's not appeared in any literature other than the DSM-IV.