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Trebs' Blog

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June 25th


Trebs

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First - thank you to Dan for his updates while I've been .... um.... hehe - more "out" of it.

 

Today has been a very full day. Physically, I'm feeling fantastic. Since I got re-admitted to the hospital last Saturday, I've gone up and down on the fever scale (my first big fever broke Monday morning, and had a 2nd spike yesterday). Today, every one of my temps has been in more of a normal range. Temps in the hospital are taken in Celsius - under 37C is totally normal, 37-38 is a low grade fever that is pretty much nothing, 38.0C+ is considered an actual fever. In Fahrenheit terms, 37.0C = 98.6F and 38.0C is 100.4F. This last temp I had was 37.3, so very happy with that.

 

One reason I'm in here still (and will be for a bit) is since I'm getting the fevers, they want to keep me totally isolated and monitored - which is a good thing. I've been in private rooms this whole time - though I am currently in my third room. I was in a double-room originally with no roommate, but then they needed that room and had a single free so moved me. Then yesterday, since the single was one of their few rooms with a cardiac monitor, they moved me again and now I'm back in a different double room, again with no roommate. VERY roomy - lol.

 

I'm constantly hooked up to IV drips - tons of hydration as well as tons of antibiotic and antiviral drips, and antibiotic pills during the day as well. Doctors come by twice a day, as well as I get my blood tested every night. The high dose chemo I got earlier (the BCNU, VP-16 and Cytoxan) basically did their job in killing all white blood cells in my body. Then I got the transfusion on the 16th, and for the past three days, I've additionally been getting neupogen shots which is a drug which helps the white cells multiply. So far - my white blood count (WBC) has been fixed at 0.3. To give perspective - normal WBC counts are 4.5 - 10.0 typically. When I got ready for the collection, I had to have at least a 3.0 to start collection.

 

***MAJOR news - my nurse JUST came in as I'm typing this - my WBC for tonight is 0.8!!! During collection, again, my WBC was just constant at a low number but once it started rising, it only took about 2 more days to get into the normal territory. Now, I'm only taking half as much neupogen a day as I got then, but still VERY encouraged by the numbers finally starting to rise.

 

In other news - I gotta say today's news both saddened and stunned me. First Farrah's passing - esp after her very courageous battle against her cancer.... hits very close to home. I mean - I am VERY thankful that I've actually been able to be able to get to complete remission, so not even close to being in the same boat as her, but still - I can understand some of what she's gone through and had to face.

 

Then the out-of-the blue news about Michael Jackson. I'm old enough that I REMEMBER the Jackson 5 - anyone else remember their cartoon? The song "One bad apple"? Then growing up and having his other major hits coming out during high school and college... I saw one interview with "people on the street" and some guy said that Michael Jackson's work was the soundtrack to this guy's life.

 

Anyways - just wanted to give an update to everyone as well as express my sense of loss of these two people today. Now that I'm feeling a lot stronger, hopefully it won't be as long until the next update.

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Thanks for the update, Robert. Your success in fighting cancer is encouraging to all of us.

 

Take good care of yourself.

 

Mike

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  • Site Administrator

:hug:

I'm glad things are going well!

 

I was also shocked and hit pretty hard last night by MJ's death.

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Glad to hear your recovery's going well. My last stepdad also went through a bout of cancer down here in Orange County...you remember, that place with Disneyland in it ;) ...and he got to full remission from his as well. Hope the rest of it goes speedily and better than anticipated.

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Good news (that I don't remember if I mentioned yet) - we already have a Disneyland trip planned for my upcoming birthday in September :-) We're thinking three days this time...

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I should be getting out of the hospital TOMORROW!!! Last night's WBC was 4.6, and they did another one this morning which was 8.8!!! So basically, I'm at the "engraftment" stage, which means that the transplant has settled and started producing white blood cells like they should. I'm VERY happy, as are my doctors. And these aren't just numbers - they also mean that I'm starting to recover an immune system and they are starting to take me off of the various antibiotics and I won't have to be as isolated as they've been keeping me.

 

Through this all, I've also been VERY lucky that I haven't gotten mucositis, which is a very common result of the chemo I had, where it really irritates the lining of my mouth and throat. I've been on a liquid diet of just taking 4 Ensure's a day because right now, any solid food feels like sawdust in my mouth - just no taste and a bad texture. But some patient have to go liquid because they can barely handle swallowing even liquid. Everytime they ask about me taking pills, it's with that in mind - for me, I have no problems but some patients have to start getting almost all of theirs meds via IV since they have a hard time swallowing pills.

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