It's never easy when you go through something like this, which I've had to do many time - first with my grandparents, then my in-laws, mother and maternal aunt. I also went through it with 18 and 32-year old cousins who had cystic fibrosis, which is even more difficult to deal with because of their younger age. Although you hate to lose them, you also don't want to see them suffer, which places you in a quandry. I wish there were something I could say to make this easier, but as far as I know, those words do not exist. My thoughts and prayers will be with you throughout this time and feel free to PM me, if you think it might help.