Jump to content
  • entries
    29
  • comments
    438
  • views
    4,128

When the news you get, isn't the news you wanted


mollyhousemouse

502 views

When the news you get, isn’t the news you want…

My Husband,  Phil, gets regular injections to his eyes for complications from diabetes. (DME) Yes, it's as bad as it sounds. It's been happening for over three years now.

Two weeks ago He saw the doctor for His regular appointment. The doctor asked the staff to go ahead and scan both eyes, not just the left. It wasn’t good news. The swelling in that right eye was back. It’s been stable for two years; it’s just been the left eye being treated. He told Phil to come back in two weeks for an injection in the right eye. 

Well, we went in today for that injection. The scan wasn’t any better today. The pressure in the eye, which had been hovering around 16-18, was at 25. Now I don’t know exactly what is being measured or what units that’s measured in, but that big of a jump isn’t positive.

At the end of today’s appointment, the doctor asked us to come back in a month for a re-scan and to talk about a plan for going forward. He didn’t give any indication to Phil as to exactly what that means.

These appointments have never been easy for me, i know they are hell on Phil, but they’ve gotten to be almost “old hat.” Until today. 

He is concerned, my stomach is in knots, and the anxiety is knocking on the door, softly, but knocking. i know that we will weather whatever storm this brings. It’s just the waiting that’s hard.



 

  • Sad 8

11 Comments


Recommended Comments

I'm sorry to here that Molly. Sending love and hugs for your hellish month to Phils next appointment 💖 :hug:

  • Like 2
  • Love 1
Link to comment

That was insensitive on Doc's part. It gives one's mind the opportunity to conjure all sorts of horror stories!

Does your healthcare cover patient advocacy? Might be worth looking into. Sometimes just having that back up makes the whole thing easier.

  • Like 4
  • Love 1
Link to comment

I'm sorry molly. Bad news is always hard to process. 

I understand your fear and anxiety. My husband has had a lot of concerning symptoms for a while now which my gut tells me it's something serious. He finally has a doctor's appointment in two weeks. He's skeptical because in the past he's gone through a whole battery of tests and they all come back normal. It's frustrating. 

Take each day for what it's worth and keep supporting each other. I'll keep thinking positive thoughts for you and Phil. 

  • Like 2
  • Love 1
Link to comment

i remember the first time you went how worried you were.

i remember when the news was good.

i will send all the positives i can and hope things improve.

i like what @Kitt said.  and yeah, the doctor could have been a bit more forthcoming considering ..

i'm sorry, honey xoxox

  • Like 2
  • Love 1
Link to comment

I have found that doctors often don’t tell you very much and it’s not necessarily because the news is bad. Because they are knowledgeable about a condition they sometimes assume that their patients know equally as much. Maybe you could call someone at the clinic and ask them to explain further? It might stop you from fearing the worst. Hope it turns out well, anyway.

  • Like 2
  • Love 1
Link to comment
On 3/11/2021 at 2:49 AM, chris191070 said:

I'm sorry to here that Molly. Sending love and hugs for your hellish month to Phils next appointment 💖 :hug:

thanks chris

On 3/11/2021 at 5:12 AM, Kitt said:

That was insensitive on Doc's part. It gives one's mind the opportunity to conjure all sorts of horror stories!

Does your healthcare cover patient advocacy? Might be worth looking into. Sometimes just having that back up makes the whole thing easier.

thanks Kitt

it's not the first time this has happened with this doctor

On 3/11/2021 at 6:28 AM, kbois said:

I'm sorry molly. Bad news is always hard to process. 

I understand your fear and anxiety. My husband has had a lot of concerning symptoms for a while now which my gut tells me it's something serious. He finally has a doctor's appointment in two weeks. He's skeptical because in the past he's gone through a whole battery of tests and they all come back normal. It's frustrating. 

Take each day for what it's worth and keep supporting each other. I'll keep thinking positive thoughts for you and Phil. 

thank you Kbois

i'll keep your family in my thoughts as well

  • Like 3
Link to comment
On 3/11/2021 at 4:23 PM, Mikiesboy said:

i remember the first time you went how worried you were.

i remember when the news was good.

i will send all the positives i can and hope things improve.

i like what @Kitt said.  and yeah, the doctor could have been a bit more forthcoming considering ..

i'm sorry, honey xoxox

it's been quite a journey hasn't it? you'll never know how much it's meant that you have been there for me

  • Love 2
Link to comment
On 3/12/2021 at 9:25 AM, Mawgrim said:

I have found that doctors often don’t tell you very much and it’s not necessarily because the news is bad. Because they are knowledgeable about a condition they sometimes assume that their patients know equally as much. Maybe you could call someone at the clinic and ask them to explain further? It might stop you from fearing the worst. Hope it turns out well, anyway.

thanks Mawgrim, i appreciate you taking the time to read & comment

  • Like 2
Link to comment

molly sorry to hear this news about Phil. hope things improve for both of you.

sending good thoughts your way.

take care and know we are here for you.

  • Love 1
Link to comment

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...

Important Information

Our Privacy Policy can be found here: Privacy Policy. We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue..