Thirdly's Thoughts

[Bill W]

4 hours ago, Thirdly said:

5/12/2025 Update: So, I think my primary doctor strategically sent me to a cancer specialist to expedite my testing. 🤣I'm not complaining because this Saturday I'm getting a CT scan, and they can finally see which of my organs (if not multiple) are crying bloody murder! 🎉

I wish you all the best then, @Thirdly. and know you have a lot of people here at GA that are there with you and behind you all the way!  

[Valkyrie]

16 hours ago, Thirdly said:

5/12/2025 Update: So, I think my primary doctor strategically sent me to a cancer specialist to expedite my testing. 🤣I'm not complaining because this Saturday I'm getting a CT scan, and they can finally see which of my organs (if not multiple) are crying bloody murder! 🎉

Good luck!  I hope you get answers soon   

[Gary L]

Hi, I’m so sorry to read of your health issues and the utter frustration you are feeling.  My sister was admitted yet again by ambulance yesterday and  no dr seems able to look at the global situation.  She has serious lung damage which causes low oxygen levels which some drs say is the cause of memory, balance, weakness issues. Others say it’s onset of dementia causing everything.  Emergency room gets oxygen level up and discharges.  
I hope you find someone who can be open to all possibilities and not just the most probable,,.  Big hugs

[chris191070]

18 hours ago, Thirdly said:

5/12/2025 Update: So, I think my primary doctor strategically sent me to a cancer specialist to expedite my testing. 🤣I'm not complaining because this Saturday I'm getting a CT scan, and they can finally see which of my organs (if not multiple) are crying bloody murder! 🎉

Hope your scans go ok.

I recently had a CT scan, after my latest epileptic seizure and I'm due to have an EEG.

So I know what it's like waiting for tests and there results.

[Thirdly]

5/19/2025 Update: Exactly 1 month and 5 days of consistent pain that I'm still in, the CT Scans revealed that indeed I have 1. A fatty liver (dad's genetics, I don't even consume liquor), 2. large uterine fibroids (mom's genetics, which I've been telling them I needed removed for months), 3. Small cyst on one of my kidneys? Where did that little guy come from? 

I see the doctor that ordered the tests on Thursday for a bit more info. But I see the gynecologist on the 2nd while hoping highly that the state of my liver will not deter the surgery I need. I just need one win, universe, just the one (other than, of course, the fact that it's not cancer, at least). 

What drives me nuts is when they say "losing weight helps" when I'm an active AF person that's barely over my own BMI. Sure, I'll Taebo my butt down to a size 4 somehow. Haven't been that size since I was 10. But, what the heck.

It's not like I'm in constant pain wishing to be in a fetal position every half hour. 😑Since 4/14/2025.

[Valkyrie]

4 minutes ago, Thirdly said:

5/19/2025 Update: Exactly 1 month and 5 days of consistent pain that I'm still in, the CT Scans revealed that indeed I have 1. A fatty liver (dad's genetics, I don't even consume liquor), 2. large uterine fibroids (mom's genetics, which I've been telling them I needed removed for months), 3. Small cyst on one of my kidneys? Where did that little guy come from? 

I see the doctor that ordered the tests on Thursday for a bit more info. But I see the gynecologist on the 2nd while hoping highly that the state of my liver will not deter the surgery I need. I just need one win, universe, just the one (other than, of course, the fact that it's not cancer, at least). 

What drives me nuts is when they say "losing weight helps" when I'm an active AF person that's barely over my own BMI. Sure, I'll Taebo my butt down to a size 4 somehow. Haven't been that size since I was 10. But, what the heck.

It's not like I'm in constant pain wishing to be in a fetal position every half hour. 😑Since 4/14/2025.

It's good that you're getting some answers.  Feel free to PM me.  I've gone through a lot of what you are right now.     I won't even get started on the whole "losing weight will help" BS.   

[chris191070]

18 minutes ago, Thirdly said:

5/19/2025 Update: Exactly 1 month and 5 days of consistent pain that I'm still in, the CT Scans revealed that indeed I have 1. A fatty liver (dad's genetics, I don't even consume liquor), 2. large uterine fibroids (mom's genetics, which I've been telling them I needed removed for months), 3. Small cyst on one of my kidneys? Where did that little guy come from? 

I see the doctor that ordered the tests on Thursday for a bit more info. But I see the gynecologist on the 2nd while hoping highly that the state of my liver will not deter the surgery I need. I just need one win, universe, just the one (other than, of course, the fact that it's not cancer, at least). 

What drives me nuts is when they say "losing weight helps" when I'm an active AF person that's barely over my own BMI. Sure, I'll Taebo my butt down to a size 4 somehow. Haven't been that size since I was 10. But, what the heck.

It's not like I'm in constant pain wishing to be in a fetal position every half hour. 😑Since 4/14/2025.

Good to here that you are getting answers.

[Gary L]

20 minutes ago, Valkyrie said:

won't even get started on the whole "losing weight will help" BS. 

Yep, been there and had the latest sermon from a newly qualified dr. “Would help” exchanged for “must” …

Another one told me that although my “bad” cholesterol was at “better than optimal low level”, it needs to be significantly lower…. Uff 😧 

[Valkyrie]

5 minutes ago, Gary L said:

Yep, been there and had the latest sermon from a newly qualified dr. “Would help” exchanged for “must” …

Another one told me that although my “bad” cholesterol was at “better than optimal low level”, it needs to be significantly lower…. Uff 😧 

My doctor has been trying to get me on statins for years, but I refuse to go on them.  

[Bill W]

3 hours ago, Thirdly said:

5/19/2025 Update: Exactly 1 month and 5 days of consistent pain that I'm still in, the CT Scans revealed that indeed I have 1. A fatty liver (dad's genetics, I don't even consume liquor), 2. large uterine fibroids (mom's genetics, which I've been telling them I needed removed for months), 3. Small cyst on one of my kidneys? Where did that little guy come from? 

I see the doctor that ordered the tests on Thursday for a bit more info. But I see the gynecologist on the 2nd while hoping highly that the state of my liver will not deter the surgery I need. I just need one win, universe, just the one (other than, of course, the fact that it's not cancer, at least). 

What drives me nuts is when they say "losing weight helps" when I'm an active AF person that's barely over my own BMI. Sure, I'll Taebo my butt down to a size 4 somehow. Haven't been that size since I was 10. But, what the heck.

It's not like I'm in constant pain wishing to be in a fetal position every half hour. 😑Since 4/14/2025.

I hope you get the uterine fibroids taken care of and maybe that will take care of your major problem and possibly you can get the liver and kidney problems taken care of later, or at least they're something you can live with, or if necessary, get those kidney cysts surgically removed later.  All the best.  

[BendtedWreath]

Nothing I can say can make what you're going through any better. But I am invested in your wellbeing, so please keep me updated.

[Aditus]

All my fingers and toes are crossed. And remember, life is just a big soap opera with ups and downs, lots of drama, karmic jokes, and, when I write it, a hea. ❤️

[Thirdly]

Thanks, everyone. All of your words are comforting amidst my exhaustion. I am just so tired of this pain. Feels like no amount of healthy food, exercise, or sleep has helped. And I'm so freaking scared my liver will cost me the surgery I need, that they will postpone or try to steer me another way because of its condition. I'm tired of feeling scared, too. 

[Bill W]

38 minutes ago, Thirdly said:

Thanks, everyone. All of your words are comforting amidst my exhaustion. I am just so tired of this pain. Feels like no amount of healthy food, exercise, or sleep has helped. And I'm so freaking scared my liver will cost me the surgery I need, that they will postpone or try to steer me another way because of its condition. I'm tired of feeling scared, too. 

Don't give up and hang in there.  Think positive that things will go your way, because a positive attitude will not only lift your spirit, but it may also affect how your body reacts as well.  I know it looks bleak, and I know what it's like to live with pain, but try to keep a positive attitude that things will all work out for you.  

[chris191070]

1 hour ago, Thirdly said:

Thanks, everyone. All of your words are comforting amidst my exhaustion. I am just so tired of this pain. Feels like no amount of healthy food, exercise, or sleep has helped. And I'm so freaking scared my liver will cost me the surgery I need, that they will postpone or try to steer me another way because of its condition. I'm tired of feeling scared, too. 

Think positive thoughts, that things will be ok and go your way.

[CassieQ]

[lawfulneutralmage]

I can only wish you all the best, although that is hollow.

Important is to concentrate on the good stuff!

Not being there, it is difficult to say, but I would advise the fear needs addressing. Can you talk to your family or a friend about the fear?

[Thirdly]

1 minute ago, lawfulneutralmage said:

Not being there, it is difficult to say, but I would advise the fear needs addressing. Can you talk to your family or a friend about the fear?

I've been talking to everyone about the fear that would lend an ear. 😂 It's a very specific fear: Living with this level of pain through another decade. It's like every decade since I hit puberty, the pain level elevated to greater and greater heights. I think it's at peak height, assuming I hit menopause in my 50s. I greatly dislike this peak height of pain. It blinds me from all tasks, good and bad. I make more mistakes than usual, the rare frenemy or two... and my brain is just flooded with "everything comes second to this right now" which probably makes me more selfish than usual. But I'm not all that mad at that part. Helps me realize what I really want, even if I'll never get there.

[lawfulneutralmage]

I am not an expert, but my hubby often has chronic pain phases. There are pains like migraine that can not be really managed, however, bodily pains can be managed, and that does not necessarily need opiates. In the UK we had specialist pain nurses. Do you have something similar available?

[Thirdly]

1 minute ago, lawfulneutralmage said:

In the UK we had specialist pain nurses. 

That's very cool. No, over here they just prescribe opiates. There are homeopathic centers, but most are out of pocket. I just need to survive these 4 hours, 8 hours on Friday, and then I'll be allowed to writhe in pain without obligations until Tuesday. 

[lawfulneutralmage]

 Again, I might sound hollow. Maybe this can give advice:   https://www.nhs.uk/live-well/pain/10-ways-to-ease-pain/

[Thirdly]

9 hours ago, lawfulneutralmage said:

 Again, I might sound hollow. Maybe this can give advice:   https://www.nhs.uk/live-well/pain/10-ways-to-ease-pain/

On the contrary, it's a big help. Ive even been doing some of the things listed here. Thank you so much! 

[lawfulneutralmage]

It is also about the links in the document to patient groups and societies. Maybe more can be found there.

All the best!

[Thirdly]

6/6/2025 Update:

Yesterday, I had some exams where they used a camera to measure everything. I came out of the exam feeling like Chun Li kicked the s**t out of me. On the 10th, I find out what the plan of attack will be when it comes to surgery.

[Bill W]

6 hours ago, Thirdly said:

6/6/2025 Update:

Yesterday, I had some exams where they used a camera to measure everything. I came out of the exam feeling like Chun Li kicked the s**t out of me. On the 10th, I find out what the plan of attack will be when it comes to surgery.

I wish you the best of luck with easing or erasing your medical woes, my friend.