Jump to content

Recommended Posts

Posted

About to start a new treatment which is called Mirikizumab. Who thinks up these names??? Interestingly, it costs $30k a year in US and a fraction of that in Europe.  Here in Spain it’s totally free.  A bit crazy 😝 

  • Love 4
  • Wow 1
Posted
8 minutes ago, Gary L said:

About to start a new treatment which is called Mirikizumab. Who thinks up these names??? Interestingly, it costs $30k a year in US and a fraction of that in Europe.  Here in Spain it’s totally free.  A bit crazy 😝 

Good luck? Is that the right thing to say?  

  • Like 1
  • Love 3
Posted
19 minutes ago, Gary L said:

About to start a new treatment which is called Mirikizumab. Who thinks up these names??? Interestingly, it costs $30k a year in US and a fraction of that in Europe.  Here in Spain it’s totally free.  A bit crazy 😝 

Fingers and toes crossed for you that your treatment is a total success! 

 

  • Like 2
  • Love 3
  • Site Moderator
Posted
1 hour ago, Gary L said:

About to start a new treatment which is called Mirikizumab. Who thinks up these names??? Interestingly, it costs $30k a year in US and a fraction of that in Europe.  Here in Spain it’s totally free.  A bit crazy 😝 

I hope you get the results you’re looking for. 🤞🏻

  • Like 1
  • Love 3
Posted

Thank you. It’s now 50 yrs of living with IBD. 

hope you guys are keeping warm. X

 

  • Love 5
Posted
14 hours ago, Gary L said:

Thank you. It’s now 50 yrs of living with IBD. 

hope you guys are keeping warm. X

 

Here's to 50 more, Gary!

  • Like 2
  • Love 1
Posted

Happy Wednesday!  It's also Pop Art Day.  I cannot draw for beans, so, any artists out there?  :)  

image.png.c03d7360d26338545f96c26abd0f6ae8.png

  • Like 4
  • Love 1
Posted

Happy Freezing Thursday ... we got an official cold weather/frostbite alert today!  Keep warm out there.  

Today is image.png.38437286b0fd043bc25f340a108e0c65.png

Do you like puzzles?  Jigsaw, crosswords, cryptograms, Sudoku or others?   I like all these myself and do them often, less so jigsaws cuz of the space needed for them. But i like them. 

So, since it's so cold .. Wrap up and do a puzzle of some sort! 

  • Love 5
Posted

It took me a few minutes to figure out it is Friday, this morning.  Several clues i had were wrong, so it is not yet Saturday. As well, our furnace decided not work overnight, it was rather chilly this morning, and we still have extreme cold alerts today and tonight.  The furnace guy showed this morning.  Yay. 

Have a fantastic day, and please try to avoid becoming a popsicle.  

image.png.8f26611732e4de5c74b6dbdde635f677.png

  • Love 4
  • Haha 1
Posted
1 minute ago, Mikiesboy said:

Have a fantastic day, and please try to avoid becoming a popsicle.  

image.png.8f26611732e4de5c74b6dbdde635f677.png

Too late lol.

Glad your furnace is getting fixed. 

  • Like 2
  • Love 2
  • Sad 1
Posted
1 minute ago, kbois said:

Too late lol.

Glad your furnace is getting fixed. 

You need an electric suit until the car is fixed.  This is from Wally World at CAD $50.00

image.thumb.png.ac2aaf5bb5b5d6e77d3160ae28372003.png

And from Amazon: 

image.thumb.png.8957d7667c047939f37ba16e428ad883.png

image.thumb.png.ce3b1525dc5dee06b5d2a41a3eeabb83.png

  • Love 4
  • Wow 1
Posted (edited)
1 hour ago, Mikiesboy said:

You need an electric suit until the car is fixed.  This is from Wally World at CAD $50.00

image.thumb.png.ac2aaf5bb5b5d6e77d3160ae28372003.png

And from Amazon: 

image.thumb.png.8957d7667c047939f37ba16e428ad883.png

image.thumb.png.ce3b1525dc5dee06b5d2a41a3eeabb83.png

I did one better. I ordered a power converter for the car and an actual heater like the ones you put under your desk at work. 

Amazon..... Same day delivery. Maybe there is a god.

Today's high will be 10F with wind chills well below zero. Send help.

Edited by kbois
  • Love 4
  • Wow 1
Posted (edited)

Here after days of rain it was 22°C - over 70°f Ithink.  Sooooo nice but it won’t last! Rain forecast…

keep warm and safe xxxxxx

Edited by Gary L
  • Love 5
Posted (edited)
35 minutes ago, kbois said:

His look says it all. 😜

images (11).jpeg

He didn't get any bacon for breakfast while you all feasted.  What part of KETO diet do you not understand? 🤣

Edited by spyke
  • Haha 4
Posted

Happy Saturday and International Zebra Day!   They are just beautiful.  Enjoy this pair!  Have a fantastic day.  I'm going to do some more butchering of my story.  What fun!  

image.png.7687a5c4698d0fef525bb45312f45814.png

  • Love 5
Posted

I am distilling my story. Chopping out swathes is hard, but necessary.  Have a nice (but cold) Sunday.

 

  • Love 5
Posted
6 hours ago, kbois said:

So... Since I've been back up north where the Arctic tundra is apparently a thing I may have forgotten about in my 17 years in the Sunshine State, I've been trying to get my various aches and pains and overall health in check. 

I found a great primary care physician who I really like. Does it seem like I have a million referrals? Yep. I've been going to physical therapy once a week to work on the hips and knees because they got really messed up when I was battling the ankle tenosynovitis for 1.5 years. Its been helping. I didn't realize how off my gait really is. 

I've also made a decision to have weight loss surgery later this year. I'm not sure exactly when as it depends on how soon I drop 30lbs before the bariatric doctor will schedule it. I also can't take time off from the new job during the summer as it's the busy season. So I think if I can't have it by early June then September is realistic. 

In the meantime, I have to have a slew of preliminary tests done. Most I have to schedule, which I've done for a couple of them so far. I didn't need an appointment for an EKG or chest x-ray so I decided to get those out of the way after my PT today. 

Can I just say I was mightily impressed with the hospital I go to for all this stuff. My PT ended right before 11 and I was in my car on the way back home by 11:33. Both the X-ray and EKG were really quick with very little wait. Practically unheard of. 

So I've set the wheels in motion. I know it's going to be a long journey but it'll be worth it in the end if I can live much healthier. Wish me luck. 

Have a good day everyone!

I'm so happy that you're putting your self first!. This getting older really sucks bigly, so do what you need to do to get healthy. We don't realize how interconnected things are (the hip bone connected to the thigh bone, the thigh bone connected to the knee bone) until you have something go awry, and you then realize that your other side is messed up from the unconscious compensating that you've been doing. You've got our support! 

  • Love 4
×
×
  • Create New...